Every Note Played by Lisa GenovaMy rating: 5 of 5 stars
Excellent read. I really didn't know what to expect when I started this book. It is an in depth journey of one man from the time he is first diagnosed with ALS. He was a wonderful concert pianist, divorced and with a daughter in university.
We first meet him when he is living in his own walk up flat in Boston. He has care givers that come and help him during the day, but he still has a modicum of independence. Things start to become worse quite quickly and one day while he can still go for a walk, he discovers that he needs the bathroom badly and can't make it to his home. He tries to call for help on his phone but mistakenly calls his ex wife. She does come right over and helps him and she realizes that he can no longer be on his own.
She becomes his caregiver and we go through all the horrible stages of ALS with them. We hear their thoughts and their regrets to each other.
I can feel that its important to understand this disease and also other debilitating diseases. This author also wrote of a woman with alzheimer disease and it was very informative. These are all things that we should know
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